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He is in the home and cannot communicate (can only move fingers on one hand). No one comes regularly, so no one would know if something happened to me.

I think your best bet is to ensure your hospice provider has a hospice facility so he can be moved there if necessary.
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Reply to cwillie
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Why isn't your husband on hospice at this point? I can't believe he is on a vent and a nurse is not required to check on him at least weekly.
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Reply to sp196902
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As previously stated - Hospice call now!
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Reply to Ohwow323
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You need to have either family or friends calling and checking on you on a regular basis, or at least a neighbor that would be kind to come check on you.
You can also let the fire dept. know that you have someone in your home that is immobile and can't speak, so in case of a fire or other emergency they will already be aware.
They used to have stickers that you could place in your window to alert them that there was a vulnerable person in the home, but with as crazy as this world has gotten, I don't believe that you'd actually want to advertise that.
Is your husband under hospice care? If not, I'm sure he would qualify for their care now, and they would have a nurse coming at least once a week to start, aides to come bathe your husband at least twice a week, so that would extra eyes on you both.
Also they would supply any needed equipment, supplies and medications and you would have access to their chaplain, social worker, and volunteers, so more eyes there as well. And it's all covered 100% under your husbands Medicare.
So I would call the hospice agency of your choice today and have them come out to do an assessment on your husband.
You won't regret it.
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Reply to funkygrandma59
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I’m in the same situation as you except my husband can speak. Hospice does not come everyday so I have a smartphone and keep it in the bedroom at night. I showed my husband that you just have to say “hey siri call 911”. That wouldn’t help your husband as he can’t speak but at least it would help you if you fell or was starting to have some kind of an attack. You could also keep the phone close to your husband and have a button that he could push with his one hand to call 911. Hope this helps a little.
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Reply to Annanell
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Ksarhe: Your DH (Dear Husband) requires hospice placement.
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Reply to Llamalover47
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You need people to check in on you daily. Have a Life Alert or similar service that you can alert if you have a medical emergency. Also have basic information posted on the inside of your doors that explains yours and your husband's health issues.
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Reply to Taarna
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It’s a failure of caregiving resources that you’re in this position and I’m sorry for that. Have you reached out to the ALS foundation and all local social services for resources in your area? I cannot imagine the strain you’re experiencing, you need respite and help desperately. I wish I had better answers and I wish you and hubby peace in such difficult times
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Reply to Daughterof1930
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Hi Ksarhe. Sorry you are worrying about this. I care for my Mom at home. My sister and I text every morning and every night. If I don’t respond, she calls, if I didn’t answer, she’d call 911.
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Reply to lmh1973
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Duplicated
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Reply to Beatty
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I just searched what was available where I live.

There are personal alarm providers. Annual fee I believe. With pendant or watch type that can be pressed if needed. Could your DH could press a pendant?

The Red Cross appears to offer a daily welfare call. I expect they could call family, neighbours or even Police if calls go ununswered & a physical welfare check was needed.

I would call your local council & ask about Welfare Check Services.

Excellent ideas about Hospice. They too may offer welfare checks. But also, may have other resources to help you both. I sincerely hope so.
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Reply to Beatty
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Life alert for you. Life alert for your husband.

Consider in home hospice. You will have people coming around weekly.

We had RN's, CNA's, Social Workers, and Chaplains coming around.
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Reply to brandee
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If something happens to you, you tell EMS that he is completely dependent on your care. You let them know that he also needs to be transported to the hospital with you. Once there, you request the social worker. The only monkeywrench would be is if you are unconscious.
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Reply to MACinCT
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