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Hospital says they cannot find a long-term skilled nursing facility that will take him while he needs restraints to keep him in his chair or bed, appreciate any thoughts.
Thanks for your very quick response, yes I was referring to Wernike's Kosakoff . He was a 5 year alcoholic who I was trying to care for while , like everyone else has a job, family etc. He was diagnosed with Warnike's when he first entered a local hospital and they, as far as I know, treated him with the typical mega doses of B . He does have lesions on the brain and I believe it has progressed to wernikie Kosakoff. ( making up stories, experiencing hallucinations, lack of motivation . no short term memory over 2 minutes) .The hospital staff is under skilled with this rare syndrome He has been restrain while in the chair and bed (even using a posy bed at times) to keep him from falling. Outside of his motor skills and probably nerve damage that gives him trouble walking, is in excellent shape. The hospital is hoping to work with him to get him walking enough where a skill nursing home will accept him. They have tried different chemical treatments to keep him calm, none seem to work. He constantly tries to get up because he can't remember being told he's in a restraint. I already appreciate your thoughts, thanks
So sorry, poor guy. But you do realize u cannot care for him. The hospital is allowed to restrain but a SNF is not. The facility becomes their home. Its their residence. So by law, no restraints.
As said, its up to the Hospital to find a place that will take him. Do you have POA for him?
I'm not at all confident that you will appreciate this thought but I can't get past: "save yourself."
If that's too cold, ponder that you have devoted yourself for five years trying to help him and all it's achieved is that he is now in hospital. Making sacrifices is a good, loving and noble thing; but when it doesn't work for the person you're making them for? What then?
Have you accepted any formal legal responsibilities on his behalf?
This is so sad, and I'm sorry you're having to deal with this horrible disease. I believe there needs to be more education about Wernicke Korsakoff and how people get it. Drinking alcohol causes it. That's right, the bubbly beverage everyone loves and you can't have a party without booze and you're considered antisocial if you don't join in. We educate people about unsafe sex, peer pressure, drugs, disease - but who ever mentions that alcohol is a drug that although socially acceptable can and does produce a disease like this? We need our brains. Enough can naturally go wrong with them that we can't stop - but we could save people from this.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
He has been restrain while in the chair and bed (even using a posy bed at times) to keep him from falling. Outside of his motor skills and probably nerve damage that gives him trouble walking, is in excellent shape. The hospital is hoping to work with him to get him walking enough where a skill nursing home will accept him. They have tried different chemical treatments to keep him calm, none seem to work. He constantly tries to get up because he can't remember being told he's in a restraint. I already appreciate your thoughts, thanks
As said, its up to the Hospital to find a place that will take him. Do you have POA for him?
thanks
Just remember that it's THEIR responsibility to find him a placement. The minute you offer to take over, he's entirely YOUR responsibility.
Don't offer. Don't be guilted into thinking that you must do something.
I'm so sorry for your troubles.
I'm not at all confident that you will appreciate this thought but I can't get past: "save yourself."
If that's too cold, ponder that you have devoted yourself for five years trying to help him and all it's achieved is that he is now in hospital. Making sacrifices is a good, loving and noble thing; but when it doesn't work for the person you're making them for? What then?
Have you accepted any formal legal responsibilities on his behalf?
https://my.clevelandclinic.org/health/diseases/22687-wernicke-korsakoff-syndrome#:~:text=When%20these%20symptoms%20become%20long,treatment%20with%20thiamine%20is%20essential.