I am really sick of talking about this and dealing with my parents and compassionately lying to my dad who has Alzheimer's. They constantly criticize me, even though they wanted me to be POA. I don't want to be the responsible one anymore. I just want to get in my car and drive away. I think it would feel so good to go away.
While it sounds trite, and I am sure you have been given this advice many times before.... you absolutely HAVE to find a way to maintain being your own person. I don't know if your parents are living with you (hope not), but even if they do, you have got to find a way to detach some, and get outside help, if possible. I know it is so easy to say, and so hard to do, and also when you know it is not a total solution to the issues. But anything at all can be helpful. MY MIL lives with us, and I work from home, I have had to literally get in my car, ride to the end of our street and sit there a bit just to get out of the same space with him.
Older parents do not have a given RIGHT to treat you with disrespect, and I read this all of the time.... so many people taking care of parents who are just mean, uncooperative and unmanageable. While I do not profess to under the mind of the elderly, my human side says that they use it as an excuse to be mean, AND I might add that while some disagree, it is not the same as when they cared for you as a child, because children are to be taken care of by their parents (if the parents are worth anything that is). Adults with adult issues are not the same. Provided you had a good relationship growing up with them, I think it is a sound decision to, in turn, help them.... but that does not include being a whipping post.
Blessings and best of luck to you. While this does not offer a hard and fast solution, maybe it will uplift you some....
What keeps me form doing what you said that has crossed my mind a ton of times? Duty. She's my wife for better or worse. I made a commitment to her but also to The Lord. I'd hate myself if I left. At some point and it would grow and be a cancer in my soul.
I'd miss my kids, I'd miss my grandkids and my family. I'd hate what some of them thought of me... though I know many would understand... but they would also feel I walked away from them which I would have.
This is the hand I'm dealt with as you. I gotta believe The Lord has a plan here.
My advice? Get more help, take some more you time but don't quit. Your parents need you desperately. But get more help and get more time away to be a better you for you and them.
Remind me too as I forget the same.
Get more help, take some more you time but don't quit. Your wife needs you desperately. But get more help and get more time away to be a better you for you and her!!!.
a super big smile and a laugh out loud just to think about it. We all have to take a big box of tissues and wear crazy clothes and stop at simple places to
just be free.
The Lord is my strength and my salvation and he uses others on the journey.
I have tried to care for him at home with aides coming in. But I end up having to help the aide. When he comes home he ends up with another infection/sepsis and he goes back to the hospital and back to a skilled rehab place.
Everyone tells me to “take care of yourself”, how can you do that when you are in charge of everything?
I have no suggestions but I do wish the health care team would all be in the really realistic future.
My point is is that everyone has their own way of "caregiving" and as long as the person being cared for is safe (not abused, fed, clothed, bathed, etc.) you have to find what works for you. Clearly what you are doing now isn't working for you or you wouldn't feel like this. Also, I believe the person being cared for will eventually adapt to their situation. It may not be the way they want it exactly, and they may try the guilt trip tactics to get their way, or anger or whatever "works" for them, but they will adapt....eventually. In the mean time, you HAVE to remember that you are just as important. You have to take care of yourself....you have a RIGHT to live a life that you are happy with. There are SOOO many really nice independent and assisted living facilities out there (yes, I know they cost $$), as well as people who have the tolerance to be caregivers, so PLEASE fine one to help you! You DESERVE a break and please do not feel bad or guilty about wanting/needing help. Try to find some activity to get involved with (a local club, volunteer work, etc.) that you look forward to. Plan a vacation to look forward to. It is OK to not want to be a caregiver 24/7. Your loved one will eventually adapt to the new "norm" and you will both be much better off for it.
What I have done for her would take all day to write down. Yes, she fired everyone I hired to help her in her home - and now she lives in an Adult Foster Care (that she 'could' afford)...and I have to say it's not much...but she is SAFE, supervised and with other people - of course she hates it - can't figure out why I won't pay $$$ to put her in another place that she feels is more befitting of her stature (as an 88 year old who never saved anything for the future - and still doesn't - spending $$ on everything under the sun, clothing, eating out, etc.)...but save any money? What for??? I should work my entire life and then treat her to royal accommodations? Well...I guess it makes me a bad daughter that I will not put myself into debt to do that - the docs told us 8 years ago that 'the train had left the station' as far as if she would get any better from an episode of CHF...and guess what - I moved her into AL and she complained about it the entire time...several more moves ensued...but never the one she wanted - in with me. That's where I drew the line...
Quit that job so you can be home more. Another line...
She may very well live another 10 years while my health continues to decline...various heart issues, cancer, etc...and she keeps right on going - like a trooper...
She even tells me that I NEED A PLAN - for if something were to happen to me - what would she do... what about her plan? Where's that?
don't feel guilty - find a place for your loved one and be okay with whatever the arrangements are within reason of course...
Take care of yourself...because if you don't - what's the PLAN?
It's not heartless or uncaring if it's the best you can do while maintaining your own life and sanity.
And, btw...you CAN relinquish your POA, if that's what you really want to do.
My husband and I have been dealing with one parent after another's situation for almost the last 10 years. We are now dealing with the last parent, my mil, and I have to say we dread the possibility of her living for another 5-10 years (which is a possibility at 85 as her mother lived to 100). Sounds terrible? Maybe. But at 56 this has taken a huge financial (had to stop working when my mom fell in 2010), emotional and physical toll on us. It's been a strain on our marriage. My husband was just diagnosed with a disease and I now over-worry about both of our health, which I think stems more from being in the midst of aging and dying for so long than anything else.
My husband had to take a leave from his job three years ago to deal with all of this and at 60, there's no going back into his field. We had to move my mil from another state close to us and after not really spending anytime around her ever, I'm realizing now that she is a hoarder and narcissist. Being around her for any length of time is draining and she passive aggressively puts down my husband and now, recently, me.
She luckily has more than enough financial resources to pay for any care (her very large sum of money is hoarded away and the most important thing to her - more than her children), so we have decided that when she needs more care, we will hire someone and she can be in a facility. Honestly, if she seemed like she cared much at all about my husband I would feel differently - I think she was always this way, but now it's more pronounced.
If you haven't been through it you have no idea what it is like. I have other friends who lost parents at a younger age or parents went quickly and they really have no idea. I also have friends who are scrambling now to deal with this as they see that their parents may live a lot longer. They are having to make tough decisions about their own lives and sacrifice financially in may cases to take care of parents who don't have much resources.
I was fortunate with my mom in that I had siblings to step in, but most importantly my mother never became mean and she had told all of us she did not want to live forever and especially in a nursing home (my grandmother spent the last 10 years in a nursing home). She said repeatedly the last two years of her life that she was ready to go. I didn't love hearing that, but it made it easier in an odd way. She did not want her children to have to take care of her and preferred a retirement home (my brother chose to have her live with him at a certain point) and then nursing home for 5 months after becoming completely bedridden.
As someone said, we are the first generation to deal with this on this scale. It is hitting the late baby boomers and will hit gen xers the hardest. AND- this is hitting all of us at an age when happiness is at it's lowest and stress and unhappiness are at their peak (statistically speaking).
The main thing is - don't feel guilty, develop some strong emotional boundaries to take care of yourself. You will grieve and remember the parent they were (if you had a good relationship before) when they go. And know that you are doing your best even if you feel like you aren't. Also, DO go talk to someone about it. A counselor friend recently told me she is seeing more and more clients in our situation. And they all say - I though this time of my life would finally be easier. Instead it's just the opposite.
And know, that this too shall pass. I say that every single day.
Dad became ill not long after and passed away last month. For the 6 months he was at the facility, he was hospitalized 3 times and at the drs many times. He was diagnosed with COPD and asthma, no history of either so I suspect either the sitters were smokers or the building was toxic. My siblings spent more time with dad in 6 months than they did in years.
My mom was alert and spry at the beginning and prayed for dads return home. My siblings were vicious in their dealing with her. They put her out of dads room for disturbing him. She said they were talking about her not having any money. The siblings cleaned her account and stop paying her medical bills, mortgage and home insurance telling her she was not entitled to dads funds because she did not work outside the home —a decision my dad made. They threatened her with lawsuits and eventually filed a frivolous lawsuit to evict me. I had to go to court twice but both times the judge refused to hear case because there was no evidence. Yesterday, the sheriff delivered a summons for mother to appear in this frivolous case. She will be 90 this month, has depression, grief and advancing dementia brought on by her children. She refuses to leave the house and could not attend the funeral. Rather than bury my dad in the plot he selected and purchased, they buried him in the country 60 miles away.
Mom was doing everything for herself and assisting me with dad but now I do everything. On her good days we have 1 minute conversations. On her bad days she cusses me and calls me stupid. She was getting up every three hours at night and fussed about having to go back to sleep. Now she sleeps all night thanks to lavender and lemongrass. I spray her pillow, have a diffuser and a plug in deodorizer.
Didnt intend for this to be so long but your post inspired me to tell my story. I am in therapy once a week and can sometimes get someone to sit with her to run errands. When I return she is angry and verbally abusive. She threatens to hit or kick me but I told her that won’t happen.
in summary, lavender and therapy for myself. With the siblings trying to evict me from a place I don’t want to be, them stealing the money, exacerbating her dementia, having to care for her everyday and not much time for myself, I truly wish I could just walk away and go live my life far away. She ran home health folks away because she has always been mean and anti-social. Memory care facilities are pricey and I would have to foot the bill out of my retirement. I feel trapped.
@Orlando I’m dealing with my passive aggressive, hoarder, narcissistic mother. Everyone thinks she’s just such a sweet old thing. I think the only reason I haven’t had a heart attack or stroke yet is Xanax.
@Anniepeepie Pick me up on the way to the cruise ship please.
I’ve been a lurker here for quite some time. Honestly, just reading how many people are going through the same thing and feeling like this helps tremendously.
My 86 year old Father in law lives with us and wont listen, he cant take anyone telling him ANYTHING, he KNOWS IT ALL! He Disrespects me and wont stop taking food to his room despite my numerous requests and confrontations with him. He will just start yelling at me if I try to tell him something.
My mother in law died a year ago August 2 (last week) and Im so stressed out and pissed off that Im seriously begining to hate him!
Sad but true. I used to LOVE old people until he moved in, now I dont even want to be around them!
I want him out of my house! I want my privacy, my sanity, and to be able to feel comfortable in MY OWN HOME!
Its bad enough Im married to a narcisstic male cheauvenist but now I have a duplicate 86 yr old version of him too living with me!
Everything this man hears or sees on the news is Bible!
Dont do this, Dont do that, you cant go outside because of the air quality, dont eat salads, dont eat fish, oh my gosh he drives me crazy! I wish I could stop him from watching the news all day and put on cartoons or something to make him stop!
He loves talking with his mouth full while hes eating! He spits food everywhere and as soon as he starts eating THATS when he starts a conversation! He wears this cheap cologne that my sister in law gave him, it makes me nauseous and gives me a headache.
Im so unhappy, stressed out, depressed, and just dont see an out anytime soon.
At 50 something years old my life wasnt supposed to be like this! I didnt sign up for this! I want to run away just me and my dog! Call me when its over!
The reality is that I will have to finish this out then drive away and not look back. If I can handle the stress of it all and I am trying. The viciousness of my siblings is beyond comprehension. My sister actually works for a major insurance company and is even using her knowledge and position to make my filing claims and processing them difficult by communicating with the nursing home and the insurance companies while I am still here managing my Mom's life. She is actually working against me and I feel alone and drained. She lives 5 hours away in another state. Visiting my Mom each night is so tough and my other family members get to keep living their lives while I am it. I totally understand what you are saying and its just wrong.